I received my second dose of Adcetris on the 17th. (of July) The only side effects that I had noticed after my first dose was some numbness in my big toe. I'm not sure if this is a side effect yet...I guess I will soon if it happens again, but... at the beginning of July my eyebrows looked different. I'm not sure if they were just thinner or if the hair just lightened. I thought they had thinned but my Mom thought it looked like they were just lighter. The next week they were darker or thicker...so I'm not really sure. My hair seems to be coming back though so I don't think the Adcetris is causing hair loss for me. However, my hair looks really light. It seems to be getting a little darker or thicker....again I'm not really sure. But let's just say right now I'm probably a blonde. Last night was the first time that I went in public without a head covering; we met my brother and his family for dinner. I think my hair is kind of at the stage where people might think that I just decided to cut my hair this way...
I have and PET scan and follow-up appointment in UCLA on August 9. If the scan shows response to treatment they could either continue the adcetris to get more of a response or hopefully get a good enough response to finally begin the high dose chemo and transplant.
